Access to Health Care – WHSC L Datablog

Atlanta Census Research Data Center (ACRDC)

Overview
The ACRDC seeks to provide qualified researchers in the Southeast the opportunity to perform statistical analysis on non-public Census microdata. The ACRDC also provides access to restricted-level files from the CDC. Link

Components
Data warehouse:

Economic data
Demographic data
Mixed data
Health data

Population
Varies by dataset

Cost
$0

Clearance?
Varies by dataset

Years Available
Varies by dataset

Linked Datasets
Varies by dataset

Data Type
Varies by dataset
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Main Variables:

Behavioral Risk Factor Surveillance System (BRFSS)

BRFSS logo
Overview
System of health surveys conducted by the Center for Disease Control (CDC). Includes health risk behavior, preventive health, health care access, chronic disease, and injury. Link/Data

Components
BRFSS, SMART: City and County Data

Population
US population, 18 yr+ years old

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1984-2017

Linked Datasets
Asthma Call-back Survey, GIS Data

Study Types
Survey

Data Type
ASCII, SAS

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Main Variables:

The Childhood Cancer Survivor Study (CCSS)

Overview
The study is designed to investigate the consequences of therapy, genetic associations, disease processes and causation, interventions, and quality of life among childhood cancer survivors. Link/Data

Components

Baseline Questionnaire
Treatment Data
Mortality
Second Neoplasm Data

Population
US childhood cancer survivors diagnosed between 1987 and 1999 and their siblings

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1994-2007: The duration of the study. Public use data is dated 2006

Linked Datasets
No

Data Type
pdf
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Main Variables:

County Health Rankings

Overview
County rankings are based on a model that includes factors such as environment, socioeconomic factors, access to healthcare, and health behaviors of the county population. Link/Data

Components

County Health Rankings
Health Factors Maps

Population
US population

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
2010-2018

Linked Datasets
No

Study Type
N/A

File Types
Excel xls files
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Main Variables:

Data.gov

Overview
Government data repository. Available to the public: find, download, and use datasets that are generated and held by the federal government. Link

Components
Data Warehouse

Population
Varies

Cost
Varies, but usually no cost

Clearance?
Varies by dataset

Years Available
Varies by dataset

Linked Datasets
Varies

Study Type
Varies by dataset

File Types
Varies by dataset
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Main Variables:

Health and Retirement Study (HRS)

Overview
Study designed to explore the changes in labor force participation and the health transitions that Americans undergo toward the end of their work lives and in the years that follow. Link/Data

Population
US population, 50+ years old

Cost
$0

Clearance?
Yes. Register as a user on the HRS website

Years Available
1992-2016

Linked Datasets
National Death Index, Geographic Information, SSA

Study Type
Longitudinal Panel Survey

File Types
.da Files, SAS, SPSS, Stata descriptions
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Main Variables:

HealthData.gov

Overview
Data hub for the Department of Health and Human Services. Link

Components
Data Warehouse

Population
US population

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
Varies

Linked Datasets
No

Study Type
Varies

File Types
CSV, Excel xls files

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Main Variables:

Healthcare Cost and Utilization Project (HCUP)

Overview
Set of databases concerning: hospital inpatient and emergency department utilization. Link/Data

Components

Nationwide Inpatient Sample (NIS)
Nationwide Emergency Dept Sample (NEDS)
Kids’ Inpatient Database (KID)
State Inpatient Databases (SID)

Population
US population. Discharge level patients from hospitals, ambulatory surgery, and ERs

Cost
$50 dollars per year for most recent years. $20 per year for previous years. (students)

Clearance?
Data Usage Agreement

Years Available
2001-2016

Linked Datasets
Yes. Varies by dataset.

Study Type
Surveillance

File Types
ASCII
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Main Variables:

Intergrated Public Use Microdata Series (IPUMS)

Overview
A data warehouse created and managed by the Minnesota Population Center. IPUMS contains population and census data from the United States and 238 countries. Link

Use this service to order census data that is relevant to your research.

Components

IPUMS- International
IPUMS- USA
IPUMS- CPS
North Atlantic Population Project
National Historical Geographic Information System
Integrated Health Interview Series
American Time Use Survey-X

Population
US population, International

Cost
$0

Clearance?
Yes. Register with the Minnesota Population Center. For International data, researchers must provide a description of research, institutional affiliation, etc.

Years Available
US Census data – 1850- present
International census data – 1960- present

Study Type
Data Warehouse

File Types
ASCII, SPSS, SAS, Stata syntax files provided

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Main Variables:

Inter-University Consortium for Political and Social Research (ICPSR)

Overview
Inter-University partnership focused on social science research. Link

Components
Data Warehouse

Population
US, International

Cost
$0

Clearance?
Yes. For some restricted data. Agreement Request System (IDARS), IRB approval, data use agreement, investigator information, description, information on data formats, data storage.

Years Available
Varies

Study Type
Varies by dataset

File Types
ASCII, SAS, SPSS, Stata
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Main Variables: