Disability – Page 2 – WHSC L Datablog

Intergrated Public Use Microdata Series (IPUMS)

Overview
A data warehouse created and managed by the Minnesota Population Center. IPUMS contains population and census data from the United States and 238 countries. Link

Use this service to order census data that is relevant to your research.

Components

IPUMS- International
IPUMS- USA
IPUMS- CPS
North Atlantic Population Project
National Historical Geographic Information System
Integrated Health Interview Series
American Time Use Survey-X

Population
US population, International

Cost
$0

Clearance?
Yes. Register with the Minnesota Population Center. For International data, researchers must provide a description of research, institutional affiliation, etc.

Years Available
US Census data – 1850- present
International census data – 1960- present

Study Type
Data Warehouse

File Types
ASCII, SPSS, SAS, Stata syntax files provided

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Main Variables:

Inter-University Consortium for Political and Social Research (ICPSR)

Overview
Inter-University partnership focused on social science research. Link

Components
Data Warehouse

Population
US, International

Cost
$0

Clearance?
Yes. For some restricted data. Agreement Request System (IDARS), IRB approval, data use agreement, investigator information, description, information on data formats, data storage.

Years Available
Varies

Study Type
Varies by dataset

File Types
ASCII, SAS, SPSS, Stata
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Main Variables:

Longitudinal Studies of Aging (LSOA)

Overview
A multi-cohort study of persons 70+ years of age designed primarily to measure changes in the health, functional status, living arrangements, and health services utilization of older Americans. Link

Components

The 1984 Supplement on Aging (SOA)
The 1984-1990 Longitudinal Study of Aging (LSOA)
The 1994 Second Supplement on Aging (SOA II)
The 1994-2000 Second Longitudinal Study of Aging (LSOA II)

Population
US population. 70+ years of age

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1984-2000

Linked Datasets
LSOA II- Mortality, LSOA II- SSA, LSOA II- Medicare: 1994-2000

Study Type
Longitudinal

File Types
ASCII, CD-ROM
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Main Variables:

Medical Expenditure Panel Survey (MEPS)

Overview
National estimates of health care use and spending, insurance, accessibility of care. Link/Data

Components

Household
Insurance
Medical Provider component

Population
US Families and individuals, Employers, Medical Providers (physicians, hospitals, pharmacies, etc.)

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1996-2017

Linked Datasets
No

Study Type
Survey

File Types
ASCII, SAS transport file
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Main Variables:

Medicare Health Outcomes Survey (HOS)

Overview
National study designed to gather data on health status for Medicare Advantage program.Link

Population
US population, 65+ years old

Cost
Varies. Based on level of access one needs. Limited Data Sets and Research Identifiable Files are available for request through ResDac (Research Data Assistant Center). $200 per cohort for Limited Data Sets.

Clearance?
Yes. Request to ResDAC, Data Use Agreement, funding information, study abstract. For Limited Data Sets and Research Identifiable Files, detailed instructions are available though ResDac (Research Data Assistant Center).

Years Available
1998-2013

Linked Datasets
Yes. SEER – MHOS linked data set

Study Type
Survey

File Types
ASCII, SAS
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Main Variables:

National Health Interview Survey (NHIS)

Overview
National survey designed to collect information on the health of United States. Link

Components

Core
Household
Family
Sample Adult
Sample Child
NHIS-D, National Health Interview Survey on Disability.

Population
US population

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1963-2017

Linked Datasets

NHIS Linked Mortality Data:1986-2006, NHIS-EPAAnnualAir: 1985-2005 (Not available for public use), NHIS-SSA: 1994-2005, NHIS- Medicaid: 1994-2005, NHIS-Medicare: 1994-1998, NHIS Geocodes.

Study Type
Survey

File Types
ASCII, SAS, SPSS, Stata
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Main Variables:

National Latino & Asian American Study (NLAAS)

Overview
A national study that aims to provide information on the similarities and differences in mental illness. Link/Data

Population
US population. Latinos and Asian Americans. 18+ years old.

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
2002-2003

Study Types
Survey

Data Type
SAS, SPSS, Stata, ASCII, TSV

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Main Variables:

National Longitudinal Study of Adolescent Health (Add Health)

Overview
Designed to study how social environments and behaviors in adolescence are linked to health outcomes. Link/Data

Components

Wave I – includes parents
Wave II- includes survey of school administration
Wave III – includes survey of romantic partners
Wave IV

Population
US, adolescents. 10-21 years old at the beginning of study.

Cost
$0

Clearance?
Yes. Restricted data: IRB- approved security plan, data use contract

Years Available
1994-2008

Linked Datasets
No

Study Type
Longitudinal

File Types
ASCII, SAS, SPSS, Stata, TSV
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Main Variables:

National Social Life, Health, and Aging Project (NSHAP)

Overview

A longitudinal study that strives to understand the well-being of older, community-dwelling Americans. Link/Data

Components

In-home interview
Biomeasures
Supplemental Self-Administered Questionnaire (SAQ)

Population
US population. Ages 57-

Cost
$0

Clearance?
Yes. A completed NSHAP restricted data usage agreement, a copy of IRB approval, and a data protection plan must be mailed to the appropriate agency.

Years Available
2005-2011

Study Type
Longitudinal Study

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Main Variables:

National Survey of Children with Special Health Care Needs (NS-CSHCN)

Overview
The survey takes a close look at the health and functional status of children with special health care needs in the U.S. Link /Data

Population
US children ages 0-17

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
2001- 2010

Linked Datasets
No

Study Type
Survey

File Types
Text files
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Main Variables: