Medicare Health Outcomes Survey (HOS)

Overview
National study designed to gather data on health status for Medicare Advantage program.Link

Population
US population, 65+ years old

Cost
Varies. Based on level of access one needs. Limited Data Sets and Research Identifiable Files are available for request through ResDac (Research Data Assistant Center). $200 per cohort for Limited Data Sets.

Clearance?
Yes. Request to ResDAC, Data Use Agreement, funding information, study abstract. For Limited Data Sets and Research Identifiable Files, detailed instructions are available though ResDac (Research Data Assistant Center).

Years Available
1998-2013

Linked Datasets
Yes. SEER – MHOS linked data set

Study Type
Survey

File Types
ASCII, SAS
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Main Variables:

National Longitudinal Mortality Study (NLMS)

Overview
A national, longitudinal, mortality study designed to study the effects of differentials in demographic and socio-economic characteristics on mortality. Link

Components
30 Cohorts including:

  • February 1978
  • April 1980
  • August 1980
  • December 1980
  • September 1985
  • 1980 Census cohort

Population
US population

Cost
$0

Clearance?
Yes. Data File Request Form

Years Available 
1973-2002

Linked Datasets
SEER-NLMS

Study Type
Sample

File Types
NLMS CD ROM
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Main Variables:

National Nursing Home Survey (NNHS)

Overview
A CDC-sponsored series of surveys of United States nursing homes, their services, their staff, and their residents. Link/Data

Components

  • 1995 Survey
  • 1997 Survey
  • 1999 Survey
  • 2004 Survey

Population
Nursing home staff and residents

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1995-2004

Linked Datasets
NNHS- Medicare: 2004, NNHS-Medicaid: 2004 NNHS- Mortality, NNHS- SSA

Study Type
Survey

File Types
ASCII, SAS
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Main Variables:

National Social Life, Health, and Aging Project (NSHAP)

norcOverview

A longitudinal study that strives to understand the well-being of older, community-dwelling Americans. Link/Data

Components

  • In-home interview
  • Biomeasures
  • Supplemental Self-Administered Questionnaire (SAQ)

Population
US population. Ages 57-

Cost
$0

Clearance?
Yes. A completed NSHAP restricted data usage agreement, a copy of IRB approval, and a data protection plan must be mailed to the appropriate agency.

Years Available 
2005-2011

Study Type
Longitudinal Study

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Main Variables: 

NHANES I Epidemiologic Followup Study (NHEFS)

Overview
A national longitudinal study designed to investigate the relationship between the variables accessed in NHANES I and subsequent morbidity, mortality, and hospital utilization. Link/Data

Population
US population. All persons 25-74 years of age who completed a medical examination at NHANES I in 1971-75

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1982- 1992, ongoing

Linked Datasets
Yes. NHEFS-Mortality: 1971-2000, NHEFS-SSA : 1962-2003, NHEFS- Medicare: 1991-2000

Study Type
Longitudinal

File Types
TSV
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Main Variables:

Online Analytical Statistical Information System (OASIS)

Overview
Online query system featuring standardized health data for the state of Georgia. Link

Components

  • Query Tool
  • Mapping Tool
  • Charting tool
  • GIS

Population
Residents of the state of Georgia

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available 

Linked Datasets
1994-2010

File Types
TSV

Note: If you need more detailed data, please contact
Shenita Peterson: srpeter [at] emory [dot] edu or the Office of Health Indicators for Planning (OHIP):
ohip [at] dhr [dot] state [dot] ga [dot] us
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Main Variables:

Sociometrics Social, Behavioral, and Health Sciences Library

Overview
A data library designed to host high quality health and science data. Link

Components

  • American Family
  • AIDS/STI
  • Child Well-Being and Poverty
  • Complementary and Alternative Medicine
  • Contextual
  • Social Research on Aging
  • Adolescent Pregnancy and Pregnancy Prevention
  • Maternal Drug Abuse
  • Disability

Population
Varies by dataset

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
Varies by dataset

Linked Datasets
No

Study Types
Data warehouse

Data Type
CSV, SPSS & SAS command files, SPSS portable and SAS transport files
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Main Variables:

Women’s Health Initiative (WHI)

Overview
Study designed to address the most common causes of death, disability and poor quality of life in postmenopausal women. Link/Data

Components

  • Randomized clinical trial
  • community prevention component
  • observational study

Population
US women, ages 50-79

Cost
$0

Clearance?
Yes. IRB approval, data use agreement, investigator information, description.

Years Available
1991-2006

Linked Datasets
No

Study Type
Clinical Trial, Cohort

File Types
ASCII, SAS, SPSS, Stata
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Main Variables: