Medicare Health Outcomes Survey (HOS)

Overview
National study designed to gather data on health status for Medicare Advantage program.Link

Population
US population, 65+ years old

Cost
Varies. Based on level of access one needs. Limited Data Sets and Research Identifiable Files are available for request through ResDac (Research Data Assistant Center). $200 per cohort for Limited Data Sets.

Clearance?
Yes. Request to ResDAC, Data Use Agreement, funding information, study abstract. For Limited Data Sets and Research Identifiable Files, detailed instructions are available though ResDac (Research Data Assistant Center).

Years Available
1998-2013

Linked Datasets
Yes. SEER – MHOS linked data set

Study Type
Survey

File Types
ASCII, SAS
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Main Variables:

National Health Interview Survey (NHIS)

NHIS Web Banner

Overview
National survey  designed to collect information on the health of United States. Link

Components

  • Core
  • Household
  • Family
  • Sample Adult
  • Sample Child
  • NHIS-D, National Health Interview Survey on Disability.

Population
US population

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1963-2017

Linked Datasets

NHIS Linked Mortality Data:1986-2006, NHIS-EPAAnnualAir: 1985-2005 (Not available for public use), NHIS-SSA: 1994-2005, NHIS- Medicaid: 1994-2005, NHIS-Medicare: 1994-1998, NHIS Geocodes.

Study Type
Survey

File Types
ASCII, SAS, SPSS, Stata
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Main Variables:

National Latino & Asian American Study (NLAAS)

NLAASOverview
A national study that aims to provide information on the similarities and differences in mental illness. Link/Data

Population
US population. Latinos and Asian Americans. 18+ years old.

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
2002-2003

Study Types
Survey

Data Type
SAS, SPSS, Stata, ASCII, TSV

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Main Variables:

National Nursing Home Survey (NNHS)

Overview
A CDC-sponsored series of surveys of United States nursing homes, their services, their staff, and their residents. Link/Data

Components

  • 1995 Survey
  • 1997 Survey
  • 1999 Survey
  • 2004 Survey

Population
Nursing home staff and residents

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1995-2004

Linked Datasets
NNHS- Medicare: 2004, NNHS-Medicaid: 2004 NNHS- Mortality, NNHS- SSA

Study Type
Survey

File Types
ASCII, SAS
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Main Variables:

National Social Life, Health, and Aging Project (NSHAP)

norcOverview

A longitudinal study that strives to understand the well-being of older, community-dwelling Americans. Link/Data

Components

  • In-home interview
  • Biomeasures
  • Supplemental Self-Administered Questionnaire (SAQ)

Population
US population. Ages 57-

Cost
$0

Clearance?
Yes. A completed NSHAP restricted data usage agreement, a copy of IRB approval, and a data protection plan must be mailed to the appropriate agency.

Years Available 
2005-2011

Study Type
Longitudinal Study

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Main Variables: 

National Survey of Children with Special Health Care Needs (NS-CSHCN)

Overview
The survey takes a close look at the health and functional status of children with special health care needs in the U.S. Link /Data

Population
US children ages 0-17

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
2001- 2010

Linked Datasets
No

Study Type
Survey

File Types
Text files
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Main Variables:

National Survey of Children’s Health (NSCH)

Overview
Survey sponsored by the Maternal and Child Health Bureau of the Health Resources and Services Administration designed to examine the physical and emotional health of children ages 0-17 years of age. Link/Data

Population
US children ages 0-17

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
2003- 2012

Linked Datasets
No

Study Type
Survey

File Types
Text files
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Main Variables:

National Survey on Drug Use and Health (NSDUH)

Overview
Provides national and state-level estimates on the use of tobacco products, alcohol, illicit drugs (including non-medical use of prescription drugs) and mental health in the United States. Link/Data

Population
US population, 12+ years old

Cost
$0

Clearance?
Yes. One has to log into SAMHSA and “sign” an online agreement.

Years Available
1979-2011

Linked Datasets
No.

Study Type
Survey

File Types
SAS, SPSS, Stata, TSV
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Main Variables:

NHANES I Epidemiologic Followup Study (NHEFS)

Overview
A national longitudinal study designed to investigate the relationship between the variables accessed in NHANES I and subsequent morbidity, mortality, and hospital utilization. Link/Data

Population
US population. All persons 25-74 years of age who completed a medical examination at NHANES I in 1971-75

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1982- 1992, ongoing

Linked Datasets
Yes. NHEFS-Mortality: 1971-2000, NHEFS-SSA : 1962-2003, NHEFS- Medicare: 1991-2000

Study Type
Longitudinal

File Types
TSV
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Main Variables:

Sociometrics Social, Behavioral, and Health Sciences Library

Overview
A data library designed to host high quality health and science data. Link

Components

  • American Family
  • AIDS/STI
  • Child Well-Being and Poverty
  • Complementary and Alternative Medicine
  • Contextual
  • Social Research on Aging
  • Adolescent Pregnancy and Pregnancy Prevention
  • Maternal Drug Abuse
  • Disability

Population
Varies by dataset

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
Varies by dataset

Linked Datasets
No

Study Types
Data warehouse

Data Type
CSV, SPSS & SAS command files, SPSS portable and SAS transport files
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Main Variables: