Tag: Minority Health

African- American, Black, Hispanic

American Community Survey

Overview
A survey designed to assist with resource allocation for American communities. Link/Data

Components

  • 1- year estimates
  • 3-year estimates
  • 5-year estimates

Population
US population

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available 
2000-2017

Linked Datasets
Puerto Rico Community Survey, Geography

Study Type
Survey

File Types
CSV, SAS

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Main Variables:

Atlanta Census Research Data Center (ACRDC)

Overview
The ACRDC seeks to provide qualified researchers in the Southeast the opportunity to perform statistical analysis on non-public Census microdata. The ACRDC also provides access to restricted-level files from the CDC. Link

Components
Data warehouse:

  • Economic data
  • Demographic data
  • Mixed data
  • Health data

Population
Varies by dataset

Cost
$0

Clearance?
Varies by dataset

Years Available
Varies by dataset

Linked Datasets
Varies by dataset

Data Type
Varies by dataset
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Main Variables:

BioLINCC

Overview
BioLINCC (Biologic Specimen and Data Repository Information Coordinating Center). Sponsored by the The National Heart, Lung and Blood Institute (NHLBI) to enhance and facilitate further research in cardiovascular, pulmonary and hematologic conditions. Link

Components
Data Warehouse

Population
US and its territories

Cost
$0

Clearance?
Yes. IRB approval, data use agreement, investigator information, description.

Study Type
Varies by study

File Types
ASCII, SAS, SPSS, Stata

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Main Variables:

Data.gov

Overview
Government data repository. Available to the public: find, download, and use datasets that are generated and held by the federal government. Link

Components
Data Warehouse

Population
Varies

Cost
Varies, but usually no cost

Clearance?
Varies by dataset

Years Available
Varies by dataset

Linked Datasets
Varies

Study Type
Varies by dataset

File Types
Varies by dataset
__________________________________________________________

Main Variables:

Inter-University Consortium for Political and Social Research (ICPSR)

Overview
Inter-University partnership focused on social science research. Link

Components
Data Warehouse

Population
US, International

Cost
$0

Clearance?
Yes. For some restricted data. Agreement Request System (IDARS), IRB approval, data use agreement, investigator information, description, information on data formats, data storage.

Years Available
Varies

Study Type
Varies by dataset

File Types
ASCII, SAS, SPSS, Stata
__________________________________________________________

Main Variables:

Medical Expenditure Panel Survey (MEPS)

Overview
National estimates of health care use and spending, insurance, accessibility of care. Link/Data

Components

  • Household
  • Insurance
  • Medical Provider component

Population
US Families and individuals, Employers, Medical Providers (physicians, hospitals, pharmacies, etc.)

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1996-2017

Linked Datasets
No

Study Type
Survey

File Types
ASCII, SAS transport file
__________________________________________________________

Main Variables:

National Health and Nutrition Examination Survey (NHANES)

Overview
National survey designed to assess health and nutritional status of US. Link

Components

  • Interview
  • Dietary
  • Examination
  • Lab

Population
US population

Cost
$0

Clearance?
No. There isn’t an additional clearance step.

Years Available
1999-2018

Linked Datasets
Yes. NHANES-SSA: 1999-2004 NHANES Geocodes, NHANES-Medicaid: 1999-2004, NHANES-Medicare: 1999-2004

Study Type
Survey

File Types
XPT SAS files
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Main Variables:

National Longitudinal Mortality Study (NLMS)

Overview
A national, longitudinal, mortality study designed to study the effects of differentials in demographic and socio-economic characteristics on mortality. Link

Components
30 Cohorts including:

  • February 1978
  • April 1980
  • August 1980
  • December 1980
  • September 1985
  • 1980 Census cohort

Population
US population

Cost
$0

Clearance?
Yes. Data File Request Form

Years Available 
1973-2002

Linked Datasets
SEER-NLMS

Study Type
Sample

File Types
NLMS CD ROM
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Main Variables:

National Social Life, Health, and Aging Project (NSHAP)

norcOverview

A longitudinal study that strives to understand the well-being of older, community-dwelling Americans. Link/Data

Components

  • In-home interview
  • Biomeasures
  • Supplemental Self-Administered Questionnaire (SAQ)

Population
US population. Ages 57-

Cost
$0

Clearance?
Yes. A completed NSHAP restricted data usage agreement, a copy of IRB approval, and a data protection plan must be mailed to the appropriate agency.

Years Available 
2005-2011

Study Type
Longitudinal Study

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Main Variables: 

Pregnancy Risk Assessment Monitoring System (PRAMS)

Overview
Collects state-specific, population-based data on maternal attitudes and experiences before, during, and shortly after pregnancy. Link

Components

  • Mail-in questionnaire
  • Telephone Interview

Population
US, Women, reproductive age

Cost
$0

Clearance?
Yes. Includes an application, project abstract (350 words), and a data sharing agreement

Years Available
1988-2009

Linked Datasets
No

Study Type
Surveillance

File Types
SUDAAN, SAS, SPSS, STATA
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Main Variables: